This will probably be my final post.

It's been over two years since I've posted on this blog! Time flies. Wow.

I just wanted to let everyone know that I've started a new blog! I didn't consciously decide to stop writing here, it just kind of happened naturally for a number of reasons. (I'm just going to copy and paste a few of those reasons from my new blog because I'm lazy.)

For years (2011-2015) I kept a blog (OurFightNow) all about Childhood Obesity, Metabolic Syndrome, diet, exercise, and my experience having weight loss surgery as a 15 year old. To my knowledge, it’s still the only blog I’ve found talking about all of those issues from a teenagers perspective. At least as of 05/11/2017 when I’m writing this.

It’s now been 2 years since I’ve posted on that site, and while I’m still incredibly proud of the fact that I managed to keep that blog going so long- it was hard to upkeep. For numerous reasons… the most notable being:

1. I’m not a child or teenager anymore, and it didn’t feel right continuing to write under the pretense that it was from that perspective. I can still recount my experiences as a child, but it’s no longer coming from that frame of mind.
2. A large portion of that blog was in regards to weight loss surgery. I had a VSG in August 2011 and I’ve written the topic almost-dead. I don’t feel like I have anything else to say on the topic, at least for the time being.
3. Honestly? The blog was kind of cringe-worthy. There are a lot of errors (typo, and just general medical knowledge errors) that I made years ago that I SHOULD go back and fix, but the thought of doing so is extremely overwhelming at the moment.

So, I’ve decided to upgrade. I’m not 100% sure what all I’ll cover here. It’ll be similar health-related content, but I’m not going to pigeon-hole myself to only write about WLS/Metabolic Syndrome. To be honest, I’m not even 100% sure that Metabolic Syndrome is my be-all end-all diagnosis. (Currently being tested for Cushing’s Syndrome? We’ll see what happens with that…) So it doesn’t feel right to only write about those two things. This will be a journey for all of us.

So that's where I'm at now. 

My new blog is www.ashtrohealth.wordpress.com  if anyone is interested in checking it out! Other than that, you're still more than welcome to email/message me whenever you want! I still get comments and emails sometimes from people who read this blog and it always makes my day. I love being able to have an open discussion about these topics with people who understand or want to understand them.

My email is ashtrovert @ gmail . com & my Instagram/Tumblr/Twitter usernames are all ashtrovert as well! Feel free to get in contact whenever you'd like and I'd love to chat!

I hope you all are having a wonderful day and thank you all so much for following this blog.

-Ashley<3(: 

What is this blog about?

Some people ask me what my blog is about.. If it's just me updating everyone on how WLS went for me, or a place to rant about all of my metabolic problems, or if it's informational, etc..

Truth is, it's a combination of it all.

When I was looking into surgery, I wanted to see how the whole process was from a (teenage) patients perspective. Not doctors. Not adults journeys. Someone near my age, that had been through similar things.. But because this is such a new thing, there isn't much documentation or anything like that online.. (not to mention not much research done at all long-term yet.)

Then I realized how nice it would have been if I could have found information online with kids dealing with Insulin Resistance, Hypothyroidism, PCOS, etc.. But again, there isn't much out there.

When I was first diagnosed with IR when I was 6 years old, that was kind of unheard of back in 2000/2001.  It was damn near a miracle that the doctor we found at the time was there, because no one even hardly knew what IR was in adults, much less young children/teenagers. There weren't really support groups for this kind of stuff (there still really isn't.) and I had no way of meeting other people with it, or talking to anyone, or knowing what it was like for anyone else.

So no. This isn't just about the weight loss surgery I had in August 2011. That was originally why I started the blog, but it's spread to a lot more than that.

I do informational posts, because through talking to people that have had surgery.. I've realized how privileged I am to have the knowledge I do about certain health-related topics. How lucky I was to see a dietitian at such a young age, and understand how your body processes food, what you need to stay healthy, what to eat to lose/maintain weight, etc.. I knew how to read labels when I was 8 years old. I learned portion sizes, etc... all before I was 10.

Not just diet, but exercise too. And the whole biological side of things? Through doctors explaining things to me, and doing my own research because I'm interested in my health, I understand a lot more than your average person about these kind of topics.. And to be honest? I enjoy researching and learning more, and sharing what I learn with other people. Writing has always been something I'm passionate about, and so has my health. Being able to mix those two things is kind of amazing. Education is a huge part of this whole process of trying to get healthy. Everyone is constantly learning, that's kind of just how this works.. and some times it's easier to learn things in plain English (given, if that's your primary language) rather than the technical terms a lot of doctors use.. Which is what I try to translate, in a sense.

So yeah. The informational posts certainly drive a lot of traffic to my blog. So do the pictures I post. And that's kind of my goal.. I want to drive people here. I want something to catch someones eye, and they spend a time reading even just one of my other posts.

I want people to learn more about these issues, how they affect younger people differently than adults, and the toll it takes on them.

I want to be able to have people to talk to, or that I know understand what I'm going through.. no matter what stage they're in. If they were just diagnosed with IR, if they've had it 10 years, if they were born with it, if they were looking into surgery, if they've already had surgery, if they're struggling with weight loss and maybe they don't understand why... all of it! There needs to be some sort of support network for these kind of things.. It affects so much more than just your physical health. and I know from experience it means/helps so much more, coming from someone who has gone through it.. compared to a doctor who has only studied it, or an adult who developed these issues/had surgery later on in life, etc..

I want people who have no clue what the hell any of this is, or who don't understand why the hell a surgeon would remove 85% of a 15 year old's stomach, to learn something.. to become more aware of these issues.

I want someone who is overweight looking for answers to stumble across this and be like "oh. maybe this is what's wrong." and even if it isn't, it may have given them the motivation to go to a doctor and get tested, and then even if absolutely nothing is wrong.. They went to see a doctor who could help guide them and get them on the right track to losing weight in a healthy way.

In all honesty, I was that desperate 13 year old looking for starvation-style diets online and going to pro-ana (pro-anorexia)  websites when I was frustrated with everything doctors and dietitians had told me before, not working..This was before I got a grip and switched doctors, and got on the right medications, and looked into surgery. I knew I was IR.. I ate healthy, i exercised.. But I didn't know about everything else I had developed that was contributing to all of my excess weight. I wish I had come across something like this a few years ago.. it probably could have helped me a lot. But I didn't. Now I'm in a position where I've learned so much, it feels kind of selfish not to share it with anyone.. you know?

So yeah. That's it. I'm in the process of going through every single post I have and editing them, updating information, etc.. Because a lot of them haven't been updated since 2011 and a lot has changed. I never used to really pay much attention to my spelling/grammar errors simply because I never thought anyone would ever see this site. Which isn't true anymore. It's kind of embarrassing going back and seeing how many times I misspelled 'exercise' or 'vertical'. :P

I just wanted to post this.. More and more people are looking at this site now, and I figured I should mention what it's all about.

Bottom line is.. There is no support network for people who have all of these problems. Not just in-person support groups, because there usually aren't enough people in an area to start a support group. Everything these days is online, and I think if there was more information out there a lot of people would be a lot better off. I want to share everything I'm going through, because surgery-wise I want people to know what they're getting themselves into to make sure they're prepared, and metabolic-wise I want everyone to know they aren't crazy, these diseases are real, and with proper diet/exercise/medication combo they can be treated, or at least dealt with. People need to understand their options, and know what's out there. I'm a strong believer in doing your own research and getting more than 1 opinion from doctors. If you see something on here that catches your eye, google it, ask your doctors.. Clearly, I'm not a doctor, nor do I aspire to be one. I'm just a girl sharing what she learns with other people, hoping in some way it could potentially help someone, or make someone more aware.

Lastly, I just want people to know they're not alone.. I've felt alone my entire life, and sometimes still do, dealing with this. No one should have to feel like they're alone going through all of this, because you aren't. I promise.

---

I hope you're all having a good day, and I'll update again soon! (:

-Ashley<3

I don't have a clue what to title this.

I've been debating on uploading this post for a long time... But in the end, it comes down to being honest. This is what I'm going through. I don't want to seem negative or whiny. I just need to vent. and for people who come here for informational purposes, I share my story because I wanted to know what it would be like for me, before I got myself into it... there was absolutely nothing online from the patients perspective.. and so I created this website, hoping to help others.. I've gotten messages from other teenagers thanking me for this blog, and what not.. so I'm not going to mislead anyone by only telling the positive things. So I'm going to continue this post. ---

I've been slacking on updates here, for numerous reasons..

1. I've gained weight. I'm confused. I'm not happy. I'm hormonal 90% of the time. I don't want to say something I'll regret saying later.

2. I haven't had the motivation. I get lots of ideas for posts, but I just never follow through.

3. I've been going to my mom's a lot more lately, and her Internet connection is ridiculously slow.

4. I'm waiting on information back from a few different doctors on why I'm having so many issues.

5. I'm trying desperately to enjoy my summer, because I didn't get to the past 2 years. And blogging on here makes it hard, because it reminds me of the negative stuff in my life right now.. Which I'm trying to spend the least amount of time possible, focusing on.

----------------------

So that's where I'm at. Let me elaborate...

At my appointment in May with my bariatric team, I was down to 197lbs. And I was super excited. I had broken the 200 mark. a huge goal for me. I was eating in between 600 & 800 calories a day. Exercising about an hour a day, getting 60+fl oz of sugar free fluids a day. and doing great.

I emailed my dietitian asking her how many calories I was supposed to be getting in a day, at 10 months out. Because I wasn't losing as quickly as they said I should be. so I wondered if maybe i wasn't eating enough, because I had that problem before. She said in between 1,000 & 1,200. So, I attempted to up my calories. I'm still barely averaging 1,000. It's hard! I have to remind myself to eat.. but I try to get enough in.

WELL. My endocrinologist upped my Metformin, from 500 2x a day to 850 2x a day, because my insulin levels were still really high. Then after about a week of that, I was having serious nausea.. and couldn't get ahold of anyone for whatever reason. So I just quit taking it. Stupid decision, I know. very stupid. Whether it was due to the metformin, or if it was just a stomach bug, i don't know. But it stopped after i quit taking it.

And that same week, I ran out of the birth control I was on (which wasn't strong enough anyway, breakthrough bleeding.) so I was off that too, no refills.

What some people don't understand is, i see SO many doctors. I have my endocrinologist, I have the nurse practitioner & dietitian tied in with the bariatric surgery, then I have my family doctor. And they don't communicate. Everyone has different ideas on what should be happening on me, and different confusion on why their expectations aren't happening. So I'm in the middle of it all, and it's extremely frustrating. I don't know who to listen to or what to do.

Sure enough, I gained 10 pounds. In literally 3 weeks.

the people tied in with bariatric surgery seem to think i don't even really need the metformin, or that i wont for very long.. BUT LOOK WHAT HAPPENS WHEN I'M OFF OF IT.

Ugh...

So after lots of blood work was done by my endocrinologist, and it was determined that all of my blood work isn't any different than it was before, she thought maybe we just titrated too fast or something... and put me on 250 2x a day of metformin.. then 2 weeks later back on 500 2x a day.. and ordered in a new prescription for a stronger birth control.. which i was supposed to get the other day! but turns out, she ordered one that isn't even made anymore.... so I'm still on no birth control..

my mom is playing phone tag with the office trying to get ahold of her to figure out whats going on, and to ask her to order in one that is still made..?

In the mean time, I'm still exercising an hour a day. only getting in probably 800-900 calories a day, if that. I"m really moody and frustrated.

I have other teenagers that had surgery, added on facebook. And a few of them had surgery in the past 2 months.. and I'm just seeing their progress. and I'm happy for them.. but it also makes me.. mad at myself? because i didn't do as well as they are!

I mean recovery wise, i did better. but weight loss wise... One girl has already lost more than I have total, in less than 2 months. She started at a higher weight/bmi than i did.. but still.. it's disheartening.

I don't know what's wrong with me. All of these other people are off of their medications, and losing more. where I'm still on my meds, and not losing at all, and actually gaining.

they're eating more less-healthy things (I saw one girl talking about how she was eating burger king and ramen noodles), and still losing... (WTF?!), where I'm gaining.

Why am I so different?

--------------------------

My theory? Honestly? When I told the doctors at the bariatric center that my problem was not eating enough.. and that I had been dealing with this my entire life... That I never really ate poorly (obviously on occasion at holidays, but on a regular basis i followed strict diets).. I don't think they believed me.

Then they put me under the impression it would be a cure-all. That I would get off my medications, and because I could only eat so much volume-wise that I'd be okay if i followed a relatively healthy diet.

But that's just it... The restriction didn't change anything. Because I didn't eat enough in the first place. I had actually been diagnosed with an eating disorder (EDNOS) 1 year prior. But My entire life, i was on diets and exercise regimens.. I reinterate this ALL the time. But no one seems to believe me. Of course I slipped up sometimes, and resented it for awhile but.. all in all... I did as well as anyone can expect a kid to do, at 6, 7, 8, 9, 10 years old, etc...

At my last appointment someone (I forget who or what title they were specifically) said I'd be able to get off of metformin... I wouldn't be on it forever.

But look at this. I've been on it since i was 7 years old. and I clearly still need it.

Nothings really changing.

I was under the impression things would change, but they aren't. for me, anyway.

All of these other people I see, who haven't had the same issues I've had since they were babies, that had surgery, are doing fantastic, and all of it is  working for them, but not me.

I literally have sat here and cried a few times, wondering why it's different for me. Why me. But then I realize I can't change it. and all I can do is do my est. Keep doing what I'm doing, and pray someone figures something out...

Honestly, one day I caught myself looking at pro-anorexica sites. which I've never done. I was just curious.. I saw these diets members had shared with each other... super low calorie and what not.. one diet was like "600 calories  a day" and it gave ideas on things and what not.. obviously it wasn't high in protein or whatever like my diet but.... I FREAKING EAT AROUND 600 CALORIES A DAY. these girls are skin and bones. and I'm still freaking obese after having my stomach cut out.

 I don't know. I don't know what to think. I'm extremely frustrated. This is the ONLY website online, for teenage bariatric surgery. I'm the only person out of a group of 30 or so people, that I know has had this issue.. (that I'm aware of. I haven't talked to absolutely everyone. but no one else has ever voiced their thoughts on this issue, either.)

So maybe it's just me. and I definitely DON'T want to persuade someone to not look into surgery, because they think it wont work for them. The only way to know is to talk to your doctor.

My advice, if you're looking into surgery right now? If restriction really isn't your problem.. If you have absolutely no problem with cheating on diets, and you exercise, and you're still not losing weight.. There may be something else going on.. that cutting out your stomach wont fix.

Maybe it'd be different with a mal-absorption procedure like RNY or DS... but, I had the VSG.. which doesn't have an intestinal component.. and this is where I'm at. what I'm dealing with.

Am I the only one dealing with this? Please for the love of god, if someone is reading this and has been through this, adult or teenager, please contact me on facebook or comment on here or email me or something... I would do just about anything to know I'm not the only defected human being with this issue.


I don't know. I Just don't know. I know I've said that like 20 times already, but I don't. It's honestly miserable. It's depressing. I had all these hopes that people instilled in me, that i saw in other patients.. and it's all come crashing down.

Obviously, I know I made a mistake by stopping the Metformin for 2 weeks. But good god. One doctor had told me I shouldn't even be on it. I wasn't 100% sure it would be that big of an issue.. but clearly it was.

I want the truth. I want to know what the hell is going on with my body. I want to know why things aren't working for me, the way they're working for other people.

I want to know why I'm becoming hypoglycemic. Literally as I was typing this, i was getting shaky. sure enough, my blood sugar was low. I just went and ate 2 slices of deli turkey, and a piece of string cheese and a few wheat saltine crackers, and I'm okay now.. but god.. I want to know why one doctor says i need metformin, but another says i don't.. I want to know why I"m eating less than most people, but still gaining weight. I don't understand it! I want answers!!

I"m like a minority, within a minority, within a minority.. By that I mean. I'm an obese teenager with serious heath issues that contribute. (1st minority) and within that, I had weight loss surgery, (2nd minority). then I'm having issues with the weight loss surgery. I"m not losing. (which would be the 3rd minority).

Ugh...

I'm at like 205 pounds now. eating about 700-800 calories a day. I can't physically eat more than that, without turning to junk like ice cream and cookies and stuff... Which I don't even really like! I don't have a sweet tooth. at all. So it's really hard to get in as many calories that my dietitian says I should be getting. I'm exercising an hour a day. resistance/weights & aerobics/cardio. getting enough fluids & protein. but nothings budging.

When I get some answers (If i get some answers) I'll get back to you all. I see the bariatric team again on August 9th. so maybe they'll have some suggestions. And I also see my endocrinologist on August 1st.. so maybe she will too.

But untill then, I feel uncomfortable blogging about surgical related things, because I'm not successful right now. And I don't want to lead anyone down the wrong path, by claiming otherwise. So I'll continue blogging, just more about the metabolic stuff (which is an area I've been slacking in, anyway.. this blog isn't just surgical. its about Insulin Resistance, Diabetes, thyroid issues, hormonal stuff, etc... as well. Anything that would die under the umbrella of "Metabolic Syndrome".).. not the surgical.

So. That's where I'm at right now. I'm going to end this here, and go to sleep.. Then probably go to the pool tomorrow, and just try to block this massive feeling of failure out of my head, until I can come up with something or a doctor can come up with something that will fix this. It's all I can do.

Seriously.. If you're a teenager that is actually reading this.. contact me on facebook or email me or something.. I'd love to know if someone is actually getting something from any of this. If you're a medical professional that is reading this, or someone with any knowledge on any topic that I cover here, and have ANY idea whatsoever of what could be going on with me that I could ask one of my doctors about, please let me know. I want to talk to people educated on the topic.. or that are going through what i am, or something similar. A support system is something that I'm lacking.

I hope you're having a good day (or at least a better one than I'm having) and I'll touch base, soon!

-Ashley