Friday, July 27, 2012

Controlling your glucose levels.

So, I've had a lot of low-blood sugar issues lately. Literally every night around midnight, right as I'm trying to get to sleep, I get all shaky and hot and I go and test my blood sugar and it's relativley low. Along with a few times periodically throughout a week at other times, it gets low. The only thing I can attribute it to is not eating enough. I was just raised up to 850mg of Metformin twice a day, but my doctor assures me it shouldn't have too much of an affect on my blood sugar since I've been on it so long. So I'm trying to eat more frequently, without grazing.

Since I've had this issue going on for a few months, I thought I'd share some tips on preventing low blood sugar, and how to raise it.. and keep it at a good level.

My dad is hypoglycemic, but has no metabolic issues or anything. Other than smoking, and an inoperable benign brain tumor, he's relatively healthy.... Works a hard labor job, etc.. Whenever his drops, he can grab Reese's Peanutbutter Cups and it'll go up and he'll be fine. He doesn't ever really test his blood sugar. He can just tell. On the few occasions we've tested it just for fun to get an idea, he doesn't start feeling it untill his blood sugar is about at 40.

Where for me, I can start feeling it in the 60's. Which isn't even that low. (So you can imagine how bad it is when it gets down into the 40's-50's..) But I've always been like this. I've been overly-sensitive. I can estimate what my blood sugar is at any given time, and I'll be within 10-15 points of it. It's annoying.. but it's become a good tool.

But most people aren't like that. They can't tell what their blood sugar is very often. So you need to test a little more often to get an idea, rather than only when you feel high or low.

I know Type 1 diabetics need to test close to 7 times a day. At least the few I know, anyway. My grandma who was type 2 had to test fasting, with every meal, and at bedtime. so about 4-5 times. And All my life I had to test 2-3 times a day, up untill the past couple years. Fasting, and 2 hours after dinner primarily. But I say occasionally 3 times, because whenever I would feel sick, as a little kid I culdn't automatically say I knew it was my blood sugar, because I didn't know. So that was always a pre-caution to rule out low or high blood sugar.

Before I get into tips on how to controll it, lets talk about symptoms of the two. Sometimes I used to think i was low, when i was actually high. Obviously the only way to be sure is to test. but here are the defined symptoms of high/low blood sugar:

High: (listed on this website. It describes it all better than I could.)
http://www.emedicinehealth.com/high_blood_sugar_hyperglycemia/page3_em.htm

Low: Personally for me, I get dizzy, shaky, irritable, and tired. But all the symptoms are listed here -- http://www.emedicinehealth.com/low_blood_sugar_hypoglycemia/page3_em.htm

So there are the lists of symptoms, and aside from testing to make sure you know where you are, and if your high or low, here are some tips on how to control it.

To prevent high/low blood sugar: protein!! Eat protein with sugar/carbs. If you're going to have something that you know can raise your blood sugar (like for me, a muffin or something like that that I normally don't have..) have milk with it. Or some source of protein. Sugar attaches itself to protein, and It won't raise your blood sugar as much.

To control high/low blood sugar: For high blood sugar, unless you're diabetic and have insulin you can take, there isn'tmuch you can do. Just wait it out. Sometimes if mine's high i'll drink a glass of skim milk and sometimes i think it slowly helps bring it down, but i'm not 100% sure on the science of that, if it helps at all. But for low blood sugar? Eat sugar/carb + protein. Like, peanutbutter toast and a glass of milk. Or strawberries and a piece of string cheese. Occassionally when it's really llow, I'll add in a real meal.. Sort of an egg sandwich. But with only one piece of bread. I'll take a piece of bread, a slice of cheese, and fry an egg and put it on top.. and eat that. It fills me up. (obviously, it may not fill somene up that has a normal sized stomach.. but it'll do.) the carb really helps raise the blood sugar and because there is protein, it stays up.

If it's dangerously low, like, below 40-45 ish... drink orange juice, or have something high in sugar. and once your blood sugar is raised, then add protein to keep it up. it'll happen faster.

So I hope this helps clear some things up for some people, and keep in mind I'm not a doctor or anything. This is just from my 10+ years experience with testing and dealig with high/low blood sugar. Obviously if you have chronic high/low's, make sure you let your doctor know and see if they have any further advice or want to run any tests or anything.

I hope you're having a great day, and feel free to email me or contact me on facebook or something, if you want. (:

---Ashley.

PS: I'm going to my first support group for the sugery, tomorrow... with a bunch of teenagers that had WLS at the same hospital I did. It's a summer event... at a rec center, there's gonna be swimming and sports and stuff like that. I have previously met 2 or 3 of the people that are going, and have talked to a few other people online. But this'll be interesting.. I'll be sure to post about it later. Maybe pictures too, if I'm allowed. (:

Monday, July 16, 2012

I don't have a clue what to title this.

I've been debating on uploading this post for a long time... But in the end, it comes down to being honest. This is what I'm going through. I don't want to seem negative or whiny. I just need to vent. and for people who come here for informational purposes, I share my story because I wanted to know what it would be like for me, before I got myself into it... there was absolutely nothing online from the patients perspective.. and so I created this website, hoping to help others.. I've gotten messages from other teenagers thanking me for this blog, and what not.. so I'm not going to mislead anyone by only telling the positive things. So I'm going to continue this post. ---

I've been slacking on updates here, for numerous reasons..

1. I've gained weight. I'm confused. I'm not happy. I'm hormonal 90% of the time. I don't want to say something I'll regret saying later.

2. I haven't had the motivation. I get lots of ideas for posts, but I just never follow through.

3. I've been going to my mom's a lot more lately, and her Internet connection is ridiculously slow.

4. I'm waiting on information back from a few different doctors on why I'm having so many issues.

5. I'm trying desperately to enjoy my summer, because I didn't get to the past 2 years. And blogging on here makes it hard, because it reminds me of the negative stuff in my life right now.. Which I'm trying to spend the least amount of time possible, focusing on.

----------------------

So that's where I'm at. Let me elaborate...

At my appointment in May with my bariatric team, I was down to 197lbs. And I was super excited. I had broken the 200 mark. a huge goal for me. I was eating in between 600 & 800 calories a day. Exercising about an hour a day, getting 60+fl oz of sugar free fluids a day. and doing great.

I emailed my dietitian asking her how many calories I was supposed to be getting in a day, at 10 months out. Because I wasn't losing as quickly as they said I should be. so I wondered if maybe i wasn't eating enough, because I had that problem before. She said in between 1,000 & 1,200. So, I attempted to up my calories. I'm still barely averaging 1,000. It's hard! I have to remind myself to eat.. but I try to get enough in.

WELL. My endocrinologist upped my Metformin, from 500 2x a day to 850 2x a day, because my insulin levels were still really high. Then after about a week of that, I was having serious nausea.. and couldn't get ahold of anyone for whatever reason. So I just quit taking it. Stupid decision, I know. very stupid. Whether it was due to the metformin, or if it was just a stomach bug, i don't know. But it stopped after i quit taking it.

And that same week, I ran out of the birth control I was on (which wasn't strong enough anyway, breakthrough bleeding.) so I was off that too, no refills.

What some people don't understand is, i see SO many doctors. I have my endocrinologist, I have the nurse practitioner & dietitian tied in with the bariatric surgery, then I have my family doctor. And they don't communicate. Everyone has different ideas on what should be happening on me, and different confusion on why their expectations aren't happening. So I'm in the middle of it all, and it's extremely frustrating. I don't know who to listen to or what to do.

Sure enough, I gained 10 pounds. In literally 3 weeks.

the people tied in with bariatric surgery seem to think i don't even really need the metformin, or that i wont for very long.. BUT LOOK WHAT HAPPENS WHEN I'M OFF OF IT.

Ugh...

So after lots of blood work was done by my endocrinologist, and it was determined that all of my blood work isn't any different than it was before, she thought maybe we just titrated too fast or something... and put me on 250 2x a day of metformin.. then 2 weeks later back on 500 2x a day.. and ordered in a new prescription for a stronger birth control.. which i was supposed to get the other day! but turns out, she ordered one that isn't even made anymore.... so I'm still on no birth control..

my mom is playing phone tag with the office trying to get ahold of her to figure out whats going on, and to ask her to order in one that is still made..?

In the mean time, I'm still exercising an hour a day. only getting in probably 800-900 calories a day, if that. I"m really moody and frustrated.

I have other teenagers that had surgery, added on facebook. And a few of them had surgery in the past 2 months.. and I'm just seeing their progress. and I'm happy for them.. but it also makes me.. mad at myself? because i didn't do as well as they are!

I mean recovery wise, i did better. but weight loss wise... One girl has already lost more than I have total, in less than 2 months. She started at a higher weight/bmi than i did.. but still.. it's disheartening.

I don't know what's wrong with me. All of these other people are off of their medications, and losing more. where I'm still on my meds, and not losing at all, and actually gaining.

they're eating more less-healthy things (I saw one girl talking about how she was eating burger king and ramen noodles), and still losing... (WTF?!), where I'm gaining.

Why am I so different?

--------------------------

My theory? Honestly? When I told the doctors at the bariatric center that my problem was not eating enough.. and that I had been dealing with this my entire life... That I never really ate poorly (obviously on occasion at holidays, but on a regular basis i followed strict diets).. I don't think they believed me.

Then they put me under the impression it would be a cure-all. That I would get off my medications, and because I could only eat so much volume-wise that I'd be okay if i followed a relatively healthy diet.

But that's just it... The restriction didn't change anything. Because I didn't eat enough in the first place. I had actually been diagnosed with an eating disorder (EDNOS) 1 year prior. But My entire life, i was on diets and exercise regimens.. I reinterate this ALL the time. But no one seems to believe me. Of course I slipped up sometimes, and resented it for awhile but.. all in all... I did as well as anyone can expect a kid to do, at 6, 7, 8, 9, 10 years old, etc...

At my last appointment someone (I forget who or what title they were specifically) said I'd be able to get off of metformin... I wouldn't be on it forever.

But look at this. I've been on it since i was 7 years old. and I clearly still need it.

Nothings really changing.

I was under the impression things would change, but they aren't. for me, anyway.

All of these other people I see, who haven't had the same issues I've had since they were babies, that had surgery, are doing fantastic, and all of it is  working for them, but not me.

I literally have sat here and cried a few times, wondering why it's different for me. Why me. But then I realize I can't change it. and all I can do is do my est. Keep doing what I'm doing, and pray someone figures something out...

Honestly, one day I caught myself looking at pro-anorexica sites. which I've never done. I was just curious.. I saw these diets members had shared with each other... super low calorie and what not.. one diet was like "600 calories  a day" and it gave ideas on things and what not.. obviously it wasn't high in protein or whatever like my diet but.... I FREAKING EAT AROUND 600 CALORIES A DAY. these girls are skin and bones. and I'm still freaking obese after having my stomach cut out.

 I don't know. I don't know what to think. I'm extremely frustrated. This is the ONLY website online, for teenage bariatric surgery. I'm the only person out of a group of 30 or so people, that I know has had this issue.. (that I'm aware of. I haven't talked to absolutely everyone. but no one else has ever voiced their thoughts on this issue, either.)

So maybe it's just me. and I definitely DON'T want to persuade someone to not look into surgery, because they think it wont work for them. The only way to know is to talk to your doctor.

My advice, if you're looking into surgery right now? If restriction really isn't your problem.. If you have absolutely no problem with cheating on diets, and you exercise, and you're still not losing weight.. There may be something else going on.. that cutting out your stomach wont fix.

Maybe it'd be different with a mal-absorption procedure like RNY or DS... but, I had the VSG.. which doesn't have an intestinal component.. and this is where I'm at. what I'm dealing with.

Am I the only one dealing with this? Please for the love of god, if someone is reading this and has been through this, adult or teenager, please contact me on facebook or comment on here or email me or something... I would do just about anything to know I'm not the only defected human being with this issue.


I don't know. I Just don't know. I know I've said that like 20 times already, but I don't. It's honestly miserable. It's depressing. I had all these hopes that people instilled in me, that i saw in other patients.. and it's all come crashing down.

Obviously, I know I made a mistake by stopping the Metformin for 2 weeks. But good god. One doctor had told me I shouldn't even be on it. I wasn't 100% sure it would be that big of an issue.. but clearly it was.

I want the truth. I want to know what the hell is going on with my body. I want to know why things aren't working for me, the way they're working for other people.

I want to know why I'm becoming hypoglycemic. Literally as I was typing this, i was getting shaky. sure enough, my blood sugar was low. I just went and ate 2 slices of deli turkey, and a piece of string cheese and a few wheat saltine crackers, and I'm okay now.. but god.. I want to know why one doctor says i need metformin, but another says i don't.. I want to know why I"m eating less than most people, but still gaining weight. I don't understand it! I want answers!!

I"m like a minority, within a minority, within a minority.. By that I mean. I'm an obese teenager with serious heath issues that contribute. (1st minority) and within that, I had weight loss surgery, (2nd minority). then I'm having issues with the weight loss surgery. I"m not losing. (which would be the 3rd minority).

Ugh...

I'm at like 205 pounds now. eating about 700-800 calories a day. I can't physically eat more than that, without turning to junk like ice cream and cookies and stuff... Which I don't even really like! I don't have a sweet tooth. at all. So it's really hard to get in as many calories that my dietitian says I should be getting. I'm exercising an hour a day. resistance/weights & aerobics/cardio. getting enough fluids & protein. but nothings budging.

When I get some answers (If i get some answers) I'll get back to you all. I see the bariatric team again on August 9th. so maybe they'll have some suggestions. And I also see my endocrinologist on August 1st.. so maybe she will too.

But untill then, I feel uncomfortable blogging about surgical related things, because I'm not successful right now. And I don't want to lead anyone down the wrong path, by claiming otherwise. So I'll continue blogging, just more about the metabolic stuff (which is an area I've been slacking in, anyway.. this blog isn't just surgical. its about Insulin Resistance, Diabetes, thyroid issues, hormonal stuff, etc... as well. Anything that would die under the umbrella of "Metabolic Syndrome".).. not the surgical.

So. That's where I'm at right now. I'm going to end this here, and go to sleep.. Then probably go to the pool tomorrow, and just try to block this massive feeling of failure out of my head, until I can come up with something or a doctor can come up with something that will fix this. It's all I can do.

Seriously.. If you're a teenager that is actually reading this.. contact me on facebook or email me or something.. I'd love to know if someone is actually getting something from any of this. If you're a medical professional that is reading this, or someone with any knowledge on any topic that I cover here, and have ANY idea whatsoever of what could be going on with me that I could ask one of my doctors about, please let me know. I want to talk to people educated on the topic.. or that are going through what i am, or something similar. A support system is something that I'm lacking.

I hope you're having a good day (or at least a better one than I'm having) and I'll touch base, soon!

-Ashley

One of the most annoying things about my life right now. (Hair loss)

I can't just say that it's an annoying thing about surgery, because that isn't true. This is most likely not-surgical-related --- because it was a problem I had before I even started looking into surgery.

Hair loss (and re-growth).

I was lucky, because I had very thick hair before this all started. I had thick stick straight strawberry-dirty blonde hair. I went through a phase in middle school where I dyed it brown a lot. and got highlights a few times. But I let it all grow out, and I haven't dyed it since.

Well!! around 2010 I started losing more hair than you're supposed to. (Most people lose around 100 hairs a day.) and I hadn't been to doctors as frequently as necessary for my Insulin Resistance, I needed blood work done.. sure enough when I went in in early 2011, I found out my thyroid levels were messed up, among other things.

That was around the time I was looking into surgery.

Well, the hair loss never stopped. Because as soon as the new medications started taking affect, I had surgery. and my body was thrown into a whole other cycle, it didn't know what the hell happened to it. I had issues drinking enough for awhile, although I did get enough protein in (and still do, most days.) The hair loss still hasn't stopped. I'm 11 months out now. It is freaking annoying.

I still lose a handful a day. I used to be able to wrap a hair elastic-tie thing around a ponytail 2-3 times. Now I can wrap it around 4-5 times. I used to like braiding my hair, because it would give it deep-looking-waves. And I would have to do like 4 braids all over my head, sleep on it, and wake up and take them out. Now I only need to do 1. and the 1 braid i do, is just a tiny bit thicker than one of the four I used to do.

It's insane.

Here, look for yourself.



That's just when I have my hair in a ponytail. So clearly I don't do that much anymore, unless necessary. and when I do, i use bobby pins and hair gel and stuff to keep it all back.

The re-growth is worse than the loss itself.

and what you see, is the re-growth. I'm still losing a lot of hair on a daily basis. The re-growth is going to continue for a very long time, and I have absolutely no idea how to get it to stop.

I don't have the money for biotin, and I asked my doctor about it and they said it hasn't been proven to help much anyway.

I take all my vitamins, get all my protein, and my blood work is all fine.

So I don't know. Maybe I need to increase my protein. But yeah.

I mean, I can make my hair look normal (although you can tell it's thinned out..)

see? 


That's how long my hair is. and I refuse to cut it off, although I know it would be easier. I regret it every time I cut it though. I chopped my long hair off in 3rd grade. and I chopped it off again in 8th. and I've always wanted super long hair, like, past my waist. I'm so close. So even though it'd be easier, I refuse to. I look terrible with short hair.

But it's SO much effort. I have to shower and wash my hair every day, or else it gets super oily and disgusting. shampoo. condition. comb. heat protectant. blow dry. straighten. finishing cream stuff to smooth it all down. comb again. and comb periodically throughout the day. and then shower again the next day. and another clump of hair ends up in the drain.

and I have to straighten it every day. because not only is my hair re-growing. but it's not growing in straight like the rest of my hair. it's growing in curly. and darker than most my hair.

wonderful, right?

I'm this >-< close to shaving my head. but again. I won't. because i love my long hair.

Ugh. It's bittersweet.

Okay. Rant over.

Bye!!! (:

-Ashley.